Mum whose son has Duchenne Muscular Dystrophy tells of her hope amid the heartbreak

A Coalisland mum, whose little boy suffers from the devastating condition Duchenne Muscular Dystrophy, has told of her ‘heartbreak and hope’ when she was given the diagnosis she had been dreading for her beautiful boy.
By Annamay McNally
Published 31st Jul 2015, 16:03 BST
Brotherly love - Luke O'Hanlon (left) with his brother Coen. The boys' mum Claire has just launched her blog on the Leap for Luke Facebook pageBrotherly love - Luke O'Hanlon (left) with his brother Coen. The boys' mum Claire has just launched her blog on the Leap for Luke Facebook page
Brotherly love - Luke O'Hanlon (left) with his brother Coen. The boys' mum Claire has just launched her blog on the Leap for Luke Facebook page

Claire O’Hanlon launched her blog in a bid to raise awareness of the daily struggle faced by families like hers.

Although heartbreaking to read, Claire’s story is also hugely inspirational as she pledges to do all she can to improve the outlook for her son Luke and countless others to have access to potentially lifesaving and life-extending drugs.

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Detailing the moment when her worst fears were confirmed by doctors, Claire writes: “It was this moment that changed who I was, changed how I see the world and the people in it. The moment when my heart shattered into a million pieces and the moment I realised that a broken heart wasn’t the end of the world, it was just the beginning of a new one.”

Follow Claire and Luke’s story through the Leap for Luke Facebook page. Details of upcoming fundraisers can be found there, including a Motorbike Run from Coalisland to Ballycastle on August 23.

Related topics:Coalisland